Dear Friends:
Today was another pretty quiet day for Paul. He seemed to sleep most of the day. He really didn't want to cooperate with the therapists again today. He didn't even want to walk. Dad exercised his legs and arms several times and he was much more limber. Tonight around 5:00 pm he started waking up a bit. He was up for almost 3 hours before he napped a bit. He only slept for about 15 minutes and was awake again. The occupational therapist came in and only worked with him by playing with his toys and getting him to grab them and pull them from her. He really enjoys playing with his toys. I suspect he is getting some stimulation from them. They are soft and easy to grab and light enough to move around. He only uses his left hand to play with them so Shannon (OT) tried to work with the right hand a little. She wasn't very successful but at least he is feeling them with that hand...maybe he will eventually grab them with that hand too!! Dr. Azzam (neurosurgeon) called the nursing home today and said he wants another CT done this Friday to see if the adjustment he made yesterday has caused the shunt to work properly. The most devastating thing that happened today was the orthopedist told Tabby that he doesn't want Paul up on his left foot AT ALL. He wants NO weight bearing on it. This means that Paul will not be able to walk until the doctor says it is OK. He doesn't see that doctor until late February. This is frustrating since Paul likes being up most of the time. Now we will have to find other ways to exercise. It feels like such a setback but he doesn't want any damage to that foot (neither do we!). I guess we've had other more difficult setbacks and we should be thankful that he has done so well! Patience is most difficult when we have setbacks .... but we will "stay the course" ..... God isn't done with Paul's miracle yet!
God Bless! Lynne & Carl
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